I received news this morning that some NIH repositories now have a message: “This repository is under review for potential modification in compliance with Administration directives.” Many of these repositories have controlled access data (because of they involve human medical data – I probably don’t have to say it, but please don’t share restricted human medical data openly…), but some have open access/unrestricted data.
Some of the affected repos:
- DASH Data and Specimen Hub.
- National COVID Cohort Collaborative.
- The DANDI Archive.
- The Brain Image Library.
- The Cancer Imaging Archive.
- BioData Catalyst.
- National Sleep Research Resource.
- National Alzheimer’s Coordinating Center.
- AgingResearchBiobank.
- Seattle Alzheimer’s Disease Brain Cell Atlas.
- ApoE Pathobiology in Aging & Alzheimer’s Disease.
- Child Language Data Exchange System.
- LDbase.
- Cellular Senescence Network (SenNet).
- The National Center for Advancing Translation Sciences’ OpenData Portal.
- Catalog of the NINDS Human Cell and Data Repository.
- The Brain Research Through Advancing Innovative Neurotechnologies Initiative.
- HIV databases.
- The Neuroscience Multi-Omic Archive.
- The Human Health Exposure Analysis Resource Data Center.
- Mouse Models of Human Cancer Database.
The article mentions how its human medical data that shouldn’t be public, its not a technical issue but a privacy one
Okay. Thank you.